Feb. 13, 2013
Today is 3 weeks since surgery. I can't believe how far I've come in
this short time. I still see such great improvement in symptoms. I've
yet to have a totally narcotic free day. I thought I would make it
yesterday, then I was blasted with a horrible headache late
afternoon....then some new and not so fun muscle spasms in my neck. I
try to not get frustrated. Being home alone for such long periods of
time gives me so much (maybe too much) time to think.
enlarged lymph node hasn't really gotten any smaller in the past few
days, however, it's no bigger and hopefully by the end of the 10 days it
will be completely gone.
Dr. Kim said the usual time for
complications is between weeks 2 and 4. He further said to call him if
my headaches worsen. I woke up with a headache this morning...a real
headache..and it's lingering. I am trying to pray these headaches away.
As vain as it sounds, I'm afraid of being put on steroids...which is
what he told me would happen if I began having headache recurrence. I
am getting married 2 months from today..and don't want to be puffy from
steroids. I know...vain, vain, vain. Hey, at least I'm honest.
excited that I may possibly get to meet another of my Chiari friends
next week. I referred her to Dr. Kim so she is driving down to Houston
from Oklahoma this coming Tuesday. Her name is Tonya. She has suffered
for along time..and is ready to give up. Add her to your prayer list if
you don't mind.
This whole journey has me so perplexed. I am
trying to determine how to best help other people like myself. There is
no need for the suffering so many go through just to find help. How do I
advocate for these people? I've looked into starting a non-profit
organization and am trying to grasp what all that entails. I have a
Facebook page dedicated to Chiari called The Constricted Cranium, as
well as a blog by the same name: constrictedcranium.blogspot.com -that
I'm using to promote awareness..I just feel like there is more I could
be doing or should be doing. At least I want to do more. I don't
know..like I said, I think too much these days and frankly, it makes my head hurt more. How does one just not think? If you have a method, please let me know!