Feb. 11, 2013
First day home alone...it's 9:15 and I need a nap. I have only refilled
my coffee cup and made a few phone calls. The phone calls just take it
out of me...total energy zappers.
Yesterday was a good day. I
was relatively pain free until late afternoon when I got hit with
horrible pain. After a few hours it was back under control and I felt
human again. I think I brought this on myself with too much visual
stimulation. I really don't know where to safely set limits on myself
in this area. I keep thinking.."It's been almost 3 weeks..surely I can do more than this.." I am not very patient I suppose.
however, am very grateful. Though this "Chiari Journey" has been long
and difficult in many ways..there are very few cases of it being
terminal. Debilitating, yes...crippling..yes--and there are those who
lose the battle and die from complications. I'm grateful that I found
help..my surgery is considered a success..even if I don't get any better
than I am today, I so much greatly improved from where I was.
everyone has this outcome with a long-term illness. I was reminded of
this just minutes ago when I read the Facebook post of a friend (which
leads me to the comment below). I am incredibly blessed.
very sad to learn this morning that my sweet friend, Alisa Dye has
leukemia. She has a new CaringBridge page..and she is in much greater
need of prayer than I. Please add her to your prayer lists everywhere.
Lisa is the person that inspired me to become a nurse, we went to church
together, home-schooled together, were in Bible study together...and I
am just in shock that this all has come about in the last week or
so..and she has already started chemo. Lisa asked specifically for
prayer for remission. Please lift up Alisa (I call her Lisa) and her
daughter Raven during this time.