My Personal Journey with Chiari Malformation Type 1, Arachnoid Cyst, Ehlers-Danlos Syndrome, Mast Cell Activation Syndrome, Hashimoto's Disease, Craniocervical Instability and Atlanto-Axial Instability.
Wednesday, July 24, 2013
Chiari Flies...So Should You!
My latest post from my flying blog....Yes..Chiari Flies..and NO problems with dizziness or headaches!
http://andsosheflies.blogspot.com/2013/07/what-i-learned-on-our-quick-trip-to-new.html
Take control of your health..at LEAST give your body all it needs to fight Chiari.
Ask me about how Juice Plus+ can help you in your recovery, how your children can take it for free and how you can gain supplemental income if you need it.
Visit my websites:
Juice Plus Tower Garden
www.theoriginalchiaritarian.wordpress.com
Ask me about how Juice Plus+ can help you in your recovery, how your children can take it for free and how you can gain supplemental income if you need it.
Visit my websites:
Juice Plus Tower Garden
www.theoriginalchiaritarian.wordpress.com
1/2 ZIPPERVERSARY Reflections
Yesterday marked 6 mths since my Chiari Decompression.
Wow! --What a Journey!
What have I learned?
A LOT!
I've learned that patience is vital in recovery, patience with yourself, patience with others.
I've learned that for every person that supports you..two will let you down.
I've learned that people are afraid of you when you have an illness.
I've learned that total strangers will show you kindnesses that the closest friends will not.
I've learned to accept disappointments and grow from them.
I've learned to truly forgive myself.
I've learned to truly forgive others.
I've learned that it's okay to have a limited life in some areas, because it causes you to live an unlimited life in other ways.
I've learned to face fears with faith and resolve.
I've learned that hair really does cover the scar...but the scar never leaves any part of your being.
I've learned that being truly loved, regardless of flaw, blemish or illness IS possible.
I've learned to get second, third and fourth opinions and to not feel guilty for being my own advocate or for challenging an ALMIGHTY doctor.
I've learned that there truly are physicians that care.
I've learned that there truly are physicians that could care less.
I've learned I am in control of my health and well being, where at one time I felt Chiari was totally in control.
I've learned to push all the research into a pile, dive in and pull out what applies to me and to be comfortable with it, regardless of criticism or opinions of others.
I've learned that if I spend too much time thinking and talking about my symptoms I have more of them.
I've learned that I can treat my body with proper nutrients.
I've learned that I don't want to be a slave to medications, doctor visits or PT sessions.
I've learned dry needling is VERY painful, yet VERY beneficial.
I've learned that some of my best inspiration and support has come from people I've never met face to face..but whom I will never forget.
I've learned a lot in the past 6 months.
Thank you for supporting me through it.
I got married to my best friend during this time.
I've developed more of a love for writing, I've been taking flying lessons, I've authored three blogs and am almost finished with a book about Chiari.
I've looked for alternative income and gotten involved with a great company, Juice Plus, that has changed my recovery and has given me a vehicle to help my friends, family and fellow Chiarians.
And offers me unlimited income potential, something I probably would not have done otherwise.
For me, this past 6 months, though sometimes horrible and painful..
Has been a gift.
I am blessed, forever changed
and excited about what my future holds.
Happy 1/2 Zipperversary to Me!
Friday, July 19, 2013
Become a Chiaritarian!
I'm becoming more disgruntled with a society that won't take their health into their own hands.
Why do we complain about doctors that don't listen, but take their little poisonous pills anyway?
Many People totally disregard nutrition in their quest for wellness.
I hate to admit I fell into this trap for a few months. I lived in despair and "Poor Me" mentality.
Thankfully, a month ago today, I took my life back.
I changed my way of eating and got back on Juice Plus+.
Within 2 weeks, I was sleeping all night.
Now, I've gone over 2 weeks with no dizziness.
I can feel my body healing itself.
No more mid-day naps.
I actually crave healthy foods. I crave green veggies and fruits.
Juice Plus+ has made all the difference. I even became a distributor. I want everyone I know to take it, to thrive. Backed by 31 research studies over the past 20 years, Juice Plus+ sets the standard on nutrition and is proven to reduce visits to the doctor. Any company that will allow children to take it's product for free deserves a second look.
Why did I become a distributor? Because I believe it works. I believe as Chiarians we have so many things working against us, we have to fight back with all we can. When I take my capsules or chewies, I am fighting back...and I am winning. AND-I'm making money doing it. Just this week I've earned a nice bonus, and have another looming in the near future.
I think of all of the people I know and I become crazed. People with diabetes, asthma, allergies, high blood pressure, heart disease, liver disease, children with autism..I wish I could afford to pay for Juice Plus+ for everyone. My advice, figure it in to your grocery budget..It IS whole foods. 17 servings of fruits, veggies and grains in 2 capsules twice a day. Make a choice. Choose a better life, choose fewer doctor visits, choose to read the research, choose to live life to the Plus+. Become a Chiaritarian and feed your body a healthy food prescription every day! I'm doing it and feeling great!
http:/mcollum.juiceplus.com www.theoriginalchiaritarian.wordpress.com
Why do we complain about doctors that don't listen, but take their little poisonous pills anyway?
Many People totally disregard nutrition in their quest for wellness.
I hate to admit I fell into this trap for a few months. I lived in despair and "Poor Me" mentality.
Thankfully, a month ago today, I took my life back.
I changed my way of eating and got back on Juice Plus+.
Within 2 weeks, I was sleeping all night.
Now, I've gone over 2 weeks with no dizziness.
I can feel my body healing itself.
No more mid-day naps.
I actually crave healthy foods. I crave green veggies and fruits.
Juice Plus+ has made all the difference. I even became a distributor. I want everyone I know to take it, to thrive. Backed by 31 research studies over the past 20 years, Juice Plus+ sets the standard on nutrition and is proven to reduce visits to the doctor. Any company that will allow children to take it's product for free deserves a second look.
Why did I become a distributor? Because I believe it works. I believe as Chiarians we have so many things working against us, we have to fight back with all we can. When I take my capsules or chewies, I am fighting back...and I am winning. AND-I'm making money doing it. Just this week I've earned a nice bonus, and have another looming in the near future.
I think of all of the people I know and I become crazed. People with diabetes, asthma, allergies, high blood pressure, heart disease, liver disease, children with autism..I wish I could afford to pay for Juice Plus+ for everyone. My advice, figure it in to your grocery budget..It IS whole foods. 17 servings of fruits, veggies and grains in 2 capsules twice a day. Make a choice. Choose a better life, choose fewer doctor visits, choose to read the research, choose to live life to the Plus+. Become a Chiaritarian and feed your body a healthy food prescription every day! I'm doing it and feeling great!
http:/mcollum.juiceplus.com www.theoriginalchiaritarian.wordpress.com
Friday, July 12, 2013
Juice Plus fundraiser details:
I want everyone I know to take Juice Plus..it is so vital to nourishing your body on a cellular level! There is a children's health study that will allow your child to take it for free. Juice Plus Central Texas (my own personal franchise) will donate $5 to the Conquer Chiari Walk for every duo (orchard/garden blend) or $7 for every Trio (orchard/garden/vineyard) ordered in July if the customer lets me know they are trying it in support of Chiari. Visit my website for more info on Juice Plus and how clinical research proves it benefits the body http://mcollum.juiceplus.com
If you need an excuse to do something healthy for yourself and your family..THIS IS IT!
Just place your order and message me that you did it for Chiari research! mmrobinson68@gmail.com
I want everyone I know to take Juice Plus..it is so vital to nourishing your body on a cellular level! There is a children's health study that will allow your child to take it for free. Juice Plus Central Texas (my own personal franchise) will donate $5 to the Conquer Chiari Walk for every duo (orchard/garden blend) or $7 for every Trio (orchard/garden/vineyard) ordered in July if the customer lets me know they are trying it in support of Chiari. Visit my website for more info on Juice Plus and how clinical research proves it benefits the body http://mcollum.juiceplus.com
If you need an excuse to do something healthy for yourself and your family..THIS IS IT!
Just place your order and message me that you did it for Chiari research! mmrobinson68@gmail.com
Conquer Chiari Walk 2013
I will be doing a Juice Plus fundraiser, mainly because I want to encourge all Chiarians to add this to their diet. It is vital that our cells get these nutrients to heal properly. Instead of advocating so much with our doctors, let's take control of our health and not let Chiari be in control so much. Learn more about Juice Plus at http://mcollum.juiceplus.com Read the clinical research and let me know what you think!
Tuesday, July 9, 2013
Caution-Adding Heat May Be Hazardous To Your Cranium
I've been told that Chiari and high temperatures don't mix.
In the past, during hot, hot, hot Mississippi summers, I remember feeling like my body was weighted down in the heat, like sand bags were sitting on my shoulders daring me to make a move.
See-I don't know if that was a normal feeling, my normal wasn't everyone else's normal.
I kept hearing people say that heat made them worse, well, I've stayed out of the heat, so I didn't know for sure.
I'm one of those "seeing is believing" people.
You could call me hard-headed, but that would be kind of a joke since my head as a perforation in the back.
I set out to draw my own conclusions about the heat.
For me--it went like this:
I spent about 30 minutes out in the direct sunlight at a car show with my husband this past weekend.
I was fine, sipping water..no problem.
Suddenly, this pulsating started.
The back of my head, where my zipper is, was pounding.
I could feel every pulsation of CSF coursing through my constricted cranium.
An Olympic-sized Chiari headache ensued..and that is all I could think of. The headache, the pulsing.and a time or two I thought I might pass out.
Not wanting to be a poor sport, I said nothing to my husband.
I smiled, answered his questions and kept my eyes focused directly ahead of me.
I became afraid to turn my head, for fear vertigo may attack me.
I did not complain or even whimper.
After a few minutes, he looked at me and said, "It's time to go, you're fading fast".
I mustered up a little enthusiasm and said, "Oh no, we don't have to. " (all the while saying in my head, "Thank You, Jesus!")
We made our way to our car, got in, turned the A/C on and started to cool off.
Cooling off took a good 30-45 minutes.
Then I noticed a swollen spot on the back of my head, the pulsating was still in place and the swollen spot was super tender. I kept drinking water and wishing I had a Valium, or a Lortab, or even a razor blade..anything to end the pulsating and the headache. Then, Bob started asking questions. He needed directions to our next stop. Oh my gosh, really..I'm trying to not freak out here!
As I opened my mouth to speak, I realized it was very difficult to get my words out.
For an hour or two I felt like I was right back at my immediate post-op state.
My words continued to stack on top of each other and I slowly unstacked them and got them out. Why on Earth did the heat make it so difficult to speak?
We made the long trip back home (horrible traffic) and I eventually took some meds and my headache calmed down to a tolerable level.
I've not been pain free since, but I can live with it. As a matter of fact, I don't know the last time, if ever, that I've been 100% pain free. Pain is just a way of life for folks like me.
So..I've now contributed my time, energy and pain for the greater good.
Once and for all I've found the truth.
It is a proven fact: Chiari and heat do NOT mix.
Do not attempt this experiment at home and if it's hotter than 85 degrees, please proceed with caution.
In the past, during hot, hot, hot Mississippi summers, I remember feeling like my body was weighted down in the heat, like sand bags were sitting on my shoulders daring me to make a move.
See-I don't know if that was a normal feeling, my normal wasn't everyone else's normal.
I kept hearing people say that heat made them worse, well, I've stayed out of the heat, so I didn't know for sure.
I'm one of those "seeing is believing" people.
You could call me hard-headed, but that would be kind of a joke since my head as a perforation in the back.
I set out to draw my own conclusions about the heat.
For me--it went like this:
I spent about 30 minutes out in the direct sunlight at a car show with my husband this past weekend.
I was fine, sipping water..no problem.
Suddenly, this pulsating started.
The back of my head, where my zipper is, was pounding.
I could feel every pulsation of CSF coursing through my constricted cranium.
An Olympic-sized Chiari headache ensued..and that is all I could think of. The headache, the pulsing.and a time or two I thought I might pass out.
Not wanting to be a poor sport, I said nothing to my husband.
I smiled, answered his questions and kept my eyes focused directly ahead of me.
I became afraid to turn my head, for fear vertigo may attack me.
I did not complain or even whimper.
After a few minutes, he looked at me and said, "It's time to go, you're fading fast".
I mustered up a little enthusiasm and said, "Oh no, we don't have to. " (all the while saying in my head, "Thank You, Jesus!")
We made our way to our car, got in, turned the A/C on and started to cool off.
Cooling off took a good 30-45 minutes.
Then I noticed a swollen spot on the back of my head, the pulsating was still in place and the swollen spot was super tender. I kept drinking water and wishing I had a Valium, or a Lortab, or even a razor blade..anything to end the pulsating and the headache. Then, Bob started asking questions. He needed directions to our next stop. Oh my gosh, really..I'm trying to not freak out here!
As I opened my mouth to speak, I realized it was very difficult to get my words out.
For an hour or two I felt like I was right back at my immediate post-op state.
My words continued to stack on top of each other and I slowly unstacked them and got them out. Why on Earth did the heat make it so difficult to speak?
We made the long trip back home (horrible traffic) and I eventually took some meds and my headache calmed down to a tolerable level.
I've not been pain free since, but I can live with it. As a matter of fact, I don't know the last time, if ever, that I've been 100% pain free. Pain is just a way of life for folks like me.
So..I've now contributed my time, energy and pain for the greater good.
Once and for all I've found the truth.
It is a proven fact: Chiari and heat do NOT mix.
Do not attempt this experiment at home and if it's hotter than 85 degrees, please proceed with caution.
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