My Constricted Cranium: A Chiari Tale

My Personal Journey with Chiari Malformation Type 1, Arachnoid Cyst, Ehlers-Danlos Syndrome, Mast Cell Activation Syndrome, Hashimoto's Disease, Craniocervical Instability and Atlanto-Axial Instability.

Saturday, October 5, 2019

Countdown to Surgery #3- Nineteen Days to go

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"I don't even know how you begin to plan for something like that..." As soon as my co-worker said it,  I felt hollow inside. ...
1 comment:

Chiari Awareness Month post- 2019

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For the last few days of Chiari Awareness Month-  I thought this to be a fitting cover photo-- Since so many of us get brushed off by well-m...
Saturday, May 11, 2019

5 Year Post Op Update

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My birthday this year, April 16 marked five years since my last brain surgery... I am still amazed and sometimes even stunned to realize I...
Saturday, July 1, 2017

Deja Vu...It can happen to you (Um, I mean...Me!)

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News Flash:  I am an addict. There, I said it.  I need a twelve step program for addicts. I am addicted to Dictionary.com.  Totally add...
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Tuesday, February 21, 2017

Sometimes I forget I have Chiari...and how remembering brings me JOY!

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Sometimes I forget I have Chiari. How is that possible? Living with a disorder so relevant to my daily activities, it seems its presence w...
Saturday, July 25, 2015

Pursue Life With Passion

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I Brain surgery blues?  Been there, done that...(still doing it most days)...But there is so much more to life than that part of who...
Monday, July 20, 2015

Writing Around In Circles Until The Truth Comes Out

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Each time I start to write, thinking something profound will come from my words,  Nothing does.  I have all of these profound tho...
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Michele Collum
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